2016 Conference Melbourne, Victoria

With thanks to Pfizer Australia

Featuring: Stress management, Adult Management & Monitoring, Transition from Child to Adolescent, Injection Demonstration, Focus Groups, and Products.

Date: Sunday 23 October 
Venue: Ella Latham Auditorium, The Royal Children's Hospital
Flemington Road, Parkville.
Time: 8:30am - 3:30pm

$20 Single Ticket, $30 Family Ticket
(including free one year membership for new members)

To book visit https://www.trybooking.com/216946

Light lunch provided

Supervised children welcome


8.30 – 9.00 Registration        
9.00 WELCOME  
9.00-9.45 Dr Phil Bergman What is CAH, What’s new, CAH around the World
9.45-10.30 Dr Jacky Hewitt How to explain CAH, Short Stature, Management
10.30-10.45 Morning Tea  
10.45-12.30 Dr Sonia Grover Child to adolescent transition,
Child to adolescent transition
  Professor Jeff Zajac Adult transition, Adults management issues
12.30-1.00 Lunch  
1.00-1.30 Ren (personal speaker) Adult life with CAH
1.30 - 2.30 Focus groups Topics may include managing adrenal crisis,
travelling with CAH Daycare, School, Teens
2.30 - 3.15 Practical/Hands on session  Injection technique
with Irene Mitchelhill & Josie Green
3.30 CLOSE   


Where is the conference being held?
Ella Latham Auditorium Theatre (ground floor), main entrance on Flemington Rd, Royal Children’s Hospital, Parkville, Melbourne VIC. The hospital is located on the outskirts of Melbourne CBD (minutes away) and a 30 mins drive from Melbourne’s Tullamarine Airport.

How to get here?
Arriving by car – Abundant car parking is available beneath the hospital in an underground car park. Enter the car park via Entry 1 (left turn only) or Entry 2 (left and right turn), from Flemington Road. Maximum daily rate is $34 per day. You are eligible for a discount parking card of $10 per day if: Your child receives a disability allowance (e.g. Child Disability 'CD' on the patient's Health Care Card or Disability Support Pension 'DSP' on the Pension Card) OR you are in possession of a Federal Government Concession – i.e. pension health care card. Car parking discounts will ONLY be issued with the correct documentation presented and viewed by car park or security staff. Payment must be made at one of the payment machines before you return to your car.

There is limited short term free and metered parking close to the hospital on selected streets including Flemington Road, in Parkville and North Melbourne. Please be mindful that parking officers are vigilant in these areas. Read all signage carefully.

Arriving by tram – Trams 59 and 55 stop outside the main entrance to the hospital at Stop 19, Flemington Road. Refer to http://www.rch.org.au for further details or http://ptv.vic.gov.au for further details. You will need a myki card to travel on Public Transport Victoria.

Is there child minding?
Regrettably child minding is not available due to hospital regulations. Children are most welcome however they must be supervised at all times by a parent or carer. On the old site of the RCH, adjacent to the current hospital, there are beautiful parklands and several playgrounds. Melbourne Zoo is also close by, a flat 20 minute walk from the hospital or 2 minute drive.

Do I need to bring food?
Morning tea and a light lunch will be provided to all attendees (incl. children) thanks to our generous sponsor Pfizer. Unfortunately special diets cannot be catered for. Some cafes, Subway and McDonalds, within the hospital grounds will be open should you wish to purchase from them.

Products for sale
A small supply of books, ID bracelets, silicon bands, tablet containers and other items will be available for sale on the day. Please note that payment is cash only. An ANZ and a Westpac ATM can be found on ground floor, main entrance.

Where can I stay?
Within the hospital ground:
Larwill Studio Hotel http://www.artserieshotels.com.au/larwill

Located within walking distance (5-10 mins):
Mercure North Melbourne, Cnr Flemington Rd & Harker St www.mercurenorthmelbourne.com.au
Apartments on Flemington, 113 Flemington Rd, North Melbourne www.northmelbourneapartments.com
Apartments on Chapman, 76 Chapman St, North Melbourne www.apartmentsonchapman.com.au

Melbourne CBD – 25 mins via public transport or 10 min drive:
Numerous city hotels with various price ranges. Try one of the following booking engine sites:

Purpose of the day
As the name suggests the CAHSGA Family Conference Day is just that … a day for CAH families to connect with other families, hear from specialists, discuss treatment and day to day living with CAH. During the afternoon a hands on injection session will be held showing families how to inject lifesaving Solu-Cortef medication and focus group discussion where families will be given a chance to chat with other families. The day is quite informal so please feel free to bring along your children. If you have any questions please email the conference organiser, President CAHSGA on president@cah.org.au


Quick Links

RareDisease.org (CAH Social Network)
RareDisease.org Social Network (Congenital Adrenal Hyperplasia)
US CAH Support Group
UK CAH Support Group


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