Are you after good books and resources to do with CAH?
USE OF PAYPAL IS LIMITED TO AUSTRALIAN-BASED CUSTOMERS ONLY. INTERNATIONAL CUSTOMERS PLEASE CONTACT THE CAHSGA PRODUCTS OFFICER FOR GUIDANCE ON MAKING YOUR PURCHASE.
Book — CAH: A Parents' Guide
by C.Y Hsu and Scott Rivkees, MD.
This exceptional book is an invaluable manual for anyone affects by CAH. Although entitled a "Parents' Guide" it would also be well received by adolescents and adults with CAH.
This 282 page book is co-authored by the mother of a CAH son and world renowned Endocrinologist who has shown a special interest in CAH, Dr Scott Rivkees. This joint effort has resulted in a remarkable collection of knowledge for the interested person covering a host of topics. A wonderful resource!
Book — Congenital Adrenal Hyperplasia (CAH)
British Columbia Children’s Hospital, Canada
This booklet has been around since 2003 and is published by the British Columbia Children’s Hospital, Canada and entitled ‘Congenital Adrenal Hyperplasia (CAH). Apart from general information about how CAH is diagnosed and treated, (including the use of hydrocortisone injections) there is an overview of special issues encountered for girls throughout the newborn period, infancy, childhood and adolescence.
Being a Canadian publication some of the treatment modes may vary from Australian standards. Nevertheless this will help publication those dealing with the difficult early days after diagnosis.
Silicon Wrist Bands
We have had these wristbands personalised by the wonderful people at Star Allergy Alerts especially for people with CAH. The each say Adrenal Insufficiency Give Cortisone.
The wristbands are made of food grade silicone, easily sterilized. They are 100% hypo-allergenic (non-toxic) and latex free.
They have soft, rounded and pliable edges that are less likely to catch on foreign objects and are designed to safely break and snap if enough force is applied.
Medport Medication Case
(with techni-ice pack)
The Florinef medication requires refrigeration. Most tablets and prescriptions require storage under 25 degrees.
These Medport thermal cases are perfect for traveling with tablets or Solu-Cortef. They will fit up to 4 tablet bottles or your Solu-Cortef and accessories. These cases can fit into a handbag or glove box.
These are very practical for school or work use. Also included are Techni-ice cooler blocks that will fit inside the Medport case.
Engraved Medical Identification Bracelet
(many colours and designs available)
With so many new products on the market we spent some time looking in to what products were best. This product is fantastic because of the low cost, adjustable band, and large range of designs.
The bands are easily adjustable from toddler size through to adult. The bands are fantastic because they can just be thrown into the wash. These are ready to use with the engraving already done for CAH. We have various designs and colours available. Please email to discuss.
Magnet - Adrenal Crisis Action Plan
(limits apply to orders)
The support group has developed this magnet in conjunction with specialists across Australia. The purpose of the magnet is to have easily accessible and basic guidelines that may assist families in the event of adrenal crisis.>
Easy to read and great for parents, grandparents and caregivers of a child who has CAH.
CAH Emergency Wallet Card
(limits apply to orders)
A credit card size emergency card which folds out with room for personal details of the person with CAH.
Other features include the important warning about giving cortisone prior to surgery. Also included is additional treatment information that may be required in an emergency.