Welcome!

Whether you have just heard of Congenital Adrenal Hyperplasia for the first time, or are a frequent vistor to our site, we are glad you found us and hope our site can be of help to you.

We provide support nationally for:

Parents of newly diagnosed children with CAH
Ongoing family needs & education
Adults living with CAH

CAHSGA Inc is working to improve knowledge and services for those diagnosed with CAH.

We are a small not for profit group run entirely by volunteers. Please consider donating to assist us to keep this group a viable support network.

2013 Paediatric Endocrine Nurses Conference

Our President, Michelle, recently spoke at this conference, offering a parent's perspective on living with CAH. Michelle, also discussed the lack of newborn screening for CAH in Australia. The presentation was enthusiatically received, with Michelle getting plenty of positive feedback from the conference delgates.

IN THE NEWS...Newborn Screening

Newborn screening for CAH is still not routinely tested for in Australia. We are one of the only developed countries who do not test for CAH.

The mortality rate for boys with CAH is higher than that of girls. If we had newborn screening this would not be the case.

See the News page for details of CAHSGA efforts in this area.

There is now a strong push by specialist Paediatric Endocrinologists in Australia (led by the Australasian Paediatric Endocrinology Group - www.apeg.org.au ) to have CAH added to the Newborn Screening (NBS) Program in this country. Moreover, leading experts within Australia’s NBS Program itself are also in favour of CAH being added to the conditions tested. Australia is one of only a few developed countries not to include CAH in its NBS Program – and indeed some of our neighbours in Asia are now leading the way locally (the Philippines, Vietnam, Taiwan and Japan).

There is now a strong push by specialist Paediatric Endocrinologists in Australia (led by the Australasian Paediatric Endocrinology Group - www.apeg.org.au ) to have CAH added to the Newborn Screening (NBS) Program in this country. Moreover, leading experts within Australia's NBS Program itself are also in favour of CAH being added to the conditions tested. Australia is one of only a few developed countries not to include CAH in its NBS Program – and indeed some of our neighbours in Asia are now leading the way locally (the Philippines, Vietnam, Taiwan and Japan).

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